celeste_noelani | Entries tagged with #nf

Mon, 09:44: Tired. TIRED of the straight up eugenics discussions in #NF communities. Not good look, y'all. #Neurofibromatosis #scwannomatosis
Mon, 10:58: Still waiting for an epic Pasifika voyaging adventure series, pre-Euro-contact ofc. So much history, legend, story… https://t.co/X7lwxlxnq1

Tue, 13:45: RT @EbThen: Offense. Is. Not. Harm. Being offended is not the same as being harmed. Stop calling people being harmed "offended."
Tue, 16:23: RT @Richie_l0c0: A white man shoots 600 people but you’re mad at the black man who’s sitting peacefully not harming anyone. That’s why he’s…
Tue, 21:52: RT @ericacbarnett: OK, Jon Grant just repeated something Cary Moon said about diff between life expectancy in S Park vs. Laurelhurst VERBAT…
Tue, 21:58: RT @NativeApprops: A year ago. An unarmed Native on horseback was charged with felony terrorizing and today we won't even call the LV shoot…
Wed, 09:35: RT @UntoNuggan: I have not even murdered any of the people who suggested I "try yoga instead of Big Pharma." https://t.co/volQpyX7Un
Wed, 10:45: I know way too much about the genetics of #NF #Schwannomatosis and it does me no good if my insurance company won't approve MRIs.
Wed, 11:42: RT @talanoa_au: Do you have a story to tell? This platform exists because of Pacific people, for Pacific people, by Pacific people. https:/…
Wed, 11:47: RT @UHMLibrary: .@UHPress 's Broken Trust now available as Open Access! #openaccess https://t.co/re4nTS1OWM https://t.co/hMtstHdisf
Wed, 11:54: RT @kim: You wankspangles killed health insurance for 9 million kids. [#CHIP] https://t.co/RjZ31g1eVZ #ZodiacKiller #PornoTed #SaveOurCare

Wed, 13:12: Well after 6mos of storage my tumor is being sent to Alabama for genetic testing. Be brave little buddy! #schwannomatosis #NF
Wed, 13:22: RT @CaribeIndigena: Colonizers with their faux-concern thinking that statehood is the only way for Puerto Rico to have a future.
Wed, 13:25: can i live? https://t.co/crStVqUynU
Wed, 17:21: Babes, did I tell you that I got a bike with a rack for hauling 6yo on her trailercycle? I am SO proud of myself! https://t.co/KtuHCm1PCO
Thu, 11:36: RT @poem_exe: the cry of the cicada the syllables moonlit night

Fri, 10:08: When I hit play, my cat (who was zonked out on my lap) woke up with a start and tried to get into my laptop to save… https://t.co/rpwNtXNHp8
Fri, 10:23: I love love LOVE this so much. https://t.co/TDlkVRgcdQ
Fri, 10:37: RT @anthoknees: I. Hate. Capitalism. https://t.co/ZgMrnSKpth
Fri, 10:49: I inherited #schwannomatosis from my father, but half of all #NF cases seem to be random mutations. Random.… https://t.co/ufDLI1EEPu
Fri, 11:06: Yes. My sister and I have so much more information than our dad ever did, which means we can manage our symptoms be… https://t.co/1oXbRTpdvC
Fri, 11:16: This, totally. My kids know all about my dad so are rightfully terrified the same thing will happen to me and then… https://t.co/4absUsJSOr
Fri, 11:20: RT @celeste_noelani: But learning all I could and speaking those fears out loud helped me to face them and find ways to address them rather…
Fri, 11:49: Welp, we just hired the architect to work on our ADA house remodel. Somebody fetch me my salts, I feel faint.

Wed, 12:01: Just wrote a letter to my first cousins letting them know about genetic testing @motomotoyama and I got confirming #schwannomatosis #NF 😟
Thu, 09:18: RT @nkjemisin: B I'll take option B gimme B fucking PLEASE https://t.co/D9ilOOjNzN

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